Pleasehelp us raise awareness and funds


My name is Carrieanne, I am 9 years old and I have poorly muscles when my mum gets me up they ache and my back hurts. When my sisters and I play on our bikes I get very tired so my dad gets me a chair to rest, and I play on my phone instead. 

Ilike to make cards and charms as I don't need to run and get tired. I also love going to watch Wigan athletics but I have to wrap up warm as I get stiff if it's cold. My favourite football players are number 11 James McClean and 10 Shaun Maloney.

        I like going on holiday with my family we have loads of fun, I like going scarbough. I love to bake cakes even though I often have to sit down but I enjoy eating them better.

Ihave loads of hospital appointments and I hate going because they say horrible things and want my blood all the time.

Please read my mums story

more information can be found here about  Our Fund

Ambassador's to carrieon fighting fund

James McClean (wigan athletic player) and Kym Marsh (actress)

our storyinthe papers

please Donate here


WristBands and Keyrings

keep an eye on our twitter auctions !

Wristbands can be purchased online through our facebook, twitter they are also on ebay.

they are avalible in the wigan athletics club shop in the grand arcade Wigan, Hartwood hall Chorley, hair 4 men Golborne, the Harrow inn Ashton in Makerfield.

For more info please email us at you can collect and we will post out if postage is covered

Our Funds Are Restricted to Vital Research! 

knowing where the money is going is very Important to Us on making a difference. Please Donate through our justgiving page.